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Here is a full overview
of the design of
the research project on:

"The clinical validity and acceptability

of alternative methods of monitoring

for young people with
Congenital Adrenal Hyperplasia (CAH)"

Overview of hair sample collection and analysis

Wester & van Rossum (2015)

Visit 1

Outpatient clinic visit

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  • Patient participation sheets

  • Consent

  • Initial hair sample

  • Book in blood tests for inpatient ward​

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Visit 2

Inpatient ward visit around

3 months later

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  • Second hair sample

  • Blood samples and saliva

  • Anthropometric measurements

  • Arrange date for possible interview​

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Spit sample
Hair sample
Body measurements
Anatomical image of a skeleton

Bacila et al (2019), Blair et al (2017), Goncalves et al (2013), and Rusell (2012)

Interviews

Visit 3

Online meeting at your convenience

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Semi-structured interview

 

​​We need

4 participants aged 12-16 years

4 participants aged 17-21 years

4 participants aged 22-25 years

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